US legislative and policy response: Some historical context to GINA

Peter Blanck, Aisling De Paor

Research output: Chapter in Book/Report/Conference proceedingChapter

3 Scopus citations

Abstract

This chapter overviews discussion of the US position, in consideration of the US helping to lead the introduction of federal-level legislation in genetic antidiscrimination law and in recognition of the importance of US and EU transatlantic dialogue in the area (Quinn and Flynn, 2012; Quinn and de Paor, 2010; Stein et al., 2010; Hendriks, 1997). Our position is that, when considering law, policy, and regulation of genetic information at the EU level, it is useful to consider transatlantic perspectives, taking into account the relationship between US and EU policy and law, as well as building upon the best practices from this relationship when engaging in law and policy reform (Quinn and Flynn, 2012; Quinn and de Paor, 2010; Stein et al., 2010; Hendriks, 1997). The US and the EU are addressing similar ethical and legal questions stemming from advancing genetic technology, albeit against the backdrop of different historic, cultural and political settings, as will be discussed in this chapter.

Original languageEnglish (US)
Title of host publicationGenetic Discrimination
Subtitle of host publicationTransatlantic Perspectives on the Case for a European Level Legal Response
PublisherTaylor and Francis
Pages97-113
Number of pages17
ISBN (Electronic)9781135044619
ISBN (Print)9780415836937
DOIs
StatePublished - Jan 1 2014

ASJC Scopus subject areas

  • Social Sciences(all)

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    Blanck, P., & De Paor, A. (2014). US legislative and policy response: Some historical context to GINA. In Genetic Discrimination: Transatlantic Perspectives on the Case for a European Level Legal Response (pp. 97-113). Taylor and Francis. https://doi.org/10.4324/9780203674299-16