TY - JOUR
T1 - Social validity of Research Ethics for All
T2 - Social-behavioral research ethics education for community research partners with developmental disabilities
AU - Research Ethics for All Consortium
AU - Schwartz, Ariel E.
AU - McDonald, Katherine
AU - Ahlers, Kaitlyn
AU - Anderson, Emily
AU - Ausderau, Karla
AU - Corey, Jesse
AU - Durkin, Brendan
AU - Fialka-Feldman, Micah
AU - Gassner, Dena
AU - Heath, Karen
AU - Jones, Jennifer
AU - Maddox, Brenna
AU - Myers, Jacob
AU - Nelis, Tia
AU - Paiewonsky, Maria
AU - Pellien, Casey
AU - Raymaker, Dora
AU - Richmond, Pamela
AU - Silverman, Benjamin C.
AU - Terrell, Pamela
AU - Tillman, Ivy
AU - Vetoulis-Acevedo, Mariana
N1 - Publisher Copyright:
© 2024 Elsevier Inc.
PY - 2024
Y1 - 2024
N2 - Background: Training in research ethics supports community research partners with developmental disabilities to take on additional research responsibilities. We worked with an academic-community partnership to develop an accessible research ethics training tailored to the roles of community research partners with developmental disabilities that leads to certification: Research Ethics for All. Objective: We evaluated the social validity of the educational activities and certification process. Methods: We shared the training via a webinar and gathered feedback from attendees using polls (138 attendees; 92 respondents). In addition, four research teams composed of academic researchers and community research partners with developmental disabilities completed Research Ethics for All. Teams provided feedback on a series of surveys as they prepared to use the training, completed each of the 5 learning units, and after completing the training. We calculated descriptive statistics and used a pragmatic content analysis approach to analyze open-ended data. Results: Teams were satisfied with the training and felt it supported learning. They endorsed the videos and learning activities but thought videos should be shorter. 68.5% of webinar attendees felt that Research Ethics for All covers essential information in social-behavioral research ethics. Several IRBs have approved the use of Research Ethics for All. Conclusions: Research Ethics for All is an acceptable research ethics training that may support community research partners with developmental disabilities to take on important research responsibilities in social-behavioral research.
AB - Background: Training in research ethics supports community research partners with developmental disabilities to take on additional research responsibilities. We worked with an academic-community partnership to develop an accessible research ethics training tailored to the roles of community research partners with developmental disabilities that leads to certification: Research Ethics for All. Objective: We evaluated the social validity of the educational activities and certification process. Methods: We shared the training via a webinar and gathered feedback from attendees using polls (138 attendees; 92 respondents). In addition, four research teams composed of academic researchers and community research partners with developmental disabilities completed Research Ethics for All. Teams provided feedback on a series of surveys as they prepared to use the training, completed each of the 5 learning units, and after completing the training. We calculated descriptive statistics and used a pragmatic content analysis approach to analyze open-ended data. Results: Teams were satisfied with the training and felt it supported learning. They endorsed the videos and learning activities but thought videos should be shorter. 68.5% of webinar attendees felt that Research Ethics for All covers essential information in social-behavioral research ethics. Several IRBs have approved the use of Research Ethics for All. Conclusions: Research Ethics for All is an acceptable research ethics training that may support community research partners with developmental disabilities to take on important research responsibilities in social-behavioral research.
KW - Community-engaged research
KW - Developmental disability
KW - Inclusive research
KW - Research ethics education
KW - Responsible conduct of research
KW - Social validity
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U2 - 10.1016/j.dhjo.2024.101762
DO - 10.1016/j.dhjo.2024.101762
M3 - Article
AN - SCOPUS:85211626651
SN - 1936-6574
JO - Disability and Health Journal
JF - Disability and Health Journal
M1 - 101762
ER -