TY - JOUR
T1 - Qualitative Data Sharing
T2 - Data Repositories and Academic Libraries as Key Partners in Addressing Challenges
AU - Mannheimer, Sara
AU - Pienta, Amy
AU - Kirilova, Dessislava
AU - Elman, Colin
AU - Wutich, Amber
N1 - Funding Information:
The authors disclosed receipt of the following financial support for the research, authorship, and/or publication of this article: Research reported in this paper was partly based on work supported by the National Human Genome Research Institute of the National Institutes of Health under award number 1R01HG00935101A1 (the content is solely the responsibility of the authors and does not necessarily represent the official views of the National Institutes of Health); by the National Science Foundation under grant no. SES-1628636 “Qualitative Data Repository 2016-2018;” by the Robert Wood Johnson Foundation under grant no. 74422, “Promoting and advancing the concept of open annotation in enhancing the credibility of qualitative research to empower social change;” and by Arizona State University’s Center for Global Health and Institute for Social Science Research.
Publisher Copyright:
© 2018 SAGE Publications.
PY - 2019/5/1
Y1 - 2019/5/1
N2 - Data sharing is increasingly perceived to be beneficial to knowledge production, and is therefore increasingly required by federal funding agencies, private funders, and journals. As qualitative researchers are faced with new expectations to share their data, data repositories and academic libraries are working to address the specific challenges of qualitative research data. This article describes how data repositories and academic libraries can partner with researchers to support three challenges associated with qualitative data sharing: (1) obtaining informed consent from participants for data sharing and scholarly reuse, (2) ensuring that qualitative data are legally and ethically shared, and (3) sharing data that cannot be deidentified. This article also describes three continuing challenges of qualitative data sharing that data repositories and academic libraries cannot specifically address—research using qualitative big data, copyright concerns, and risk of decontextualization. While data repositories and academic libraries cannot provide easy solutions to these three continuing challenges, they can partner with researchers and connect them with other relevant specialists to examine these challenges. Ultimately, this article suggests that data repositories and academic libraries can help researchers address some of the challenges associated with ethical and lawful qualitative data sharing.
AB - Data sharing is increasingly perceived to be beneficial to knowledge production, and is therefore increasingly required by federal funding agencies, private funders, and journals. As qualitative researchers are faced with new expectations to share their data, data repositories and academic libraries are working to address the specific challenges of qualitative research data. This article describes how data repositories and academic libraries can partner with researchers to support three challenges associated with qualitative data sharing: (1) obtaining informed consent from participants for data sharing and scholarly reuse, (2) ensuring that qualitative data are legally and ethically shared, and (3) sharing data that cannot be deidentified. This article also describes three continuing challenges of qualitative data sharing that data repositories and academic libraries cannot specifically address—research using qualitative big data, copyright concerns, and risk of decontextualization. While data repositories and academic libraries cannot provide easy solutions to these three continuing challenges, they can partner with researchers and connect them with other relevant specialists to examine these challenges. Ultimately, this article suggests that data repositories and academic libraries can help researchers address some of the challenges associated with ethical and lawful qualitative data sharing.
KW - data repositories
KW - data sharing
KW - library data services
KW - qualitative data
UR - http://www.scopus.com/inward/record.url?scp=85049844609&partnerID=8YFLogxK
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U2 - 10.1177/0002764218784991
DO - 10.1177/0002764218784991
M3 - Article
AN - SCOPUS:85049844609
SN - 0002-7642
VL - 63
SP - 643
EP - 664
JO - American Behavioral Scientist
JF - American Behavioral Scientist
IS - 5
ER -