Paradigm shifts in disability and health: Toward more ethical public health research

Katherine E. McDonald, Dora M. Raymaker

Research output: Contribution to journalArticlepeer-review

54 Scopus citations


Disability is often considered a health outcome disproportionately experienced byminority groups. It is also possible to view people with disabilities as a minority group that itself experiences health disparities. Calls to reduce these disparities necessitate the inclusion of people with developmental disabilities in research, although resulting ethical issues can thwart scientific progress. Using disability rights principles can help address ethical challenges and promote safe, respectful public health research. Examples include applying human rights frameworks, providing accommodations, attending to power, countering legacies of deficits-based models of disability, and transforming access to science more broadly. Collectively, these strategies can encourage broader engagement in safe, respectful, inclusive public health research aimed at promoting the health and well-being of people with developmental disabilities.

Original languageEnglish (US)
Pages (from-to)2165-2173
Number of pages9
JournalAmerican Journal of Public Health
Issue number12
StatePublished - Dec 2013

ASJC Scopus subject areas

  • Public Health, Environmental and Occupational Health


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