Most community-based participatory research (CBPR) projects involve local communities defined by race, ethnicity, geography, or occupation. Autistic self-advocates, a geographically dispersed community defined by disability, experience issues in research similar to those expressed by more traditional minorities. We sought to build an academic-community partnership that uses CBPR to improve the lives of people on the autistic spectrum. The Academic Autistic Spectrum Partnership in Research and Education (AASPIRE) includes representatives from academic, self-advocate, family, and professional communities. We are currently conducting several studies about the health care experiences and well-being of autistic adults. We have learned a number of strategies that integrate technology and process to successfully equalize power and accommodate diverse communication and collaboration needs. CBPR can be conducted successfully with autistic self-advocates. Our strategies may be useful to other CBPR partnerships, especially ones that cannot meet in person or that include people with diverse communication needs.
|Original language||English (US)|
|Number of pages||8|
|Journal||Progress in community health partnerships : research, education, and action|
|State||Published - Jun 1 2011|
ASJC Scopus subject areas
- Health(social science)
- Sociology and Political Science