Collaboration strategies in nontraditional community-based participatory research partnerships: lessons from an academic-community partnership with autistic self-advocates.

Christina Nicolaidis, Dora Raymaker, Katherine McDonald, Sebastian Dern, Elesia Ashkenazy, Cody Boisclair, Scott Robertson, Amanda Baggs

Research output: Contribution to journalArticle

72 Scopus citations

Abstract

Most community-based participatory research (CBPR) projects involve local communities defined by race, ethnicity, geography, or occupation. Autistic self-advocates, a geographically dispersed community defined by disability, experience issues in research similar to those expressed by more traditional minorities. We sought to build an academic-community partnership that uses CBPR to improve the lives of people on the autistic spectrum. The Academic Autistic Spectrum Partnership in Research and Education (AASPIRE) includes representatives from academic, self-advocate, family, and professional communities. We are currently conducting several studies about the health care experiences and well-being of autistic adults. We have learned a number of strategies that integrate technology and process to successfully equalize power and accommodate diverse communication and collaboration needs. CBPR can be conducted successfully with autistic self-advocates. Our strategies may be useful to other CBPR partnerships, especially ones that cannot meet in person or that include people with diverse communication needs.

Original languageEnglish (US)
Pages (from-to)143-150
Number of pages8
JournalProgress in community health partnerships : research, education, and action
Volume5
Issue number2
StatePublished - Jun 1 2011

ASJC Scopus subject areas

  • Health(social science)
  • Education
  • Sociology and Political Science

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