@article{d591edf4227340459256c48cabf168e4,
title = "Acceptability and Feasibility of a Disease-specific Patient Portal in Adolescents With Sickle Cell Disease",
abstract = "Objective:To examine the acceptability, feasibility, and efficacy of a health care portal.Observations:Adolescents and young adults with sickle cell disease were taught how to use sickle cell disease conditions page in MyChart and completed questionnaires at baseline, postintervention (T2, 6 wk after baseline) and after 3 months (T3). In total, 44 participants (M age=18.82, SD=2.72) viewed an average of 58.07 pages from T1 to T2. The portal was highly accepted (90.32%). Efficacy data indicated that portal use was associated with improved patient-provider communication.Conclusions:Electronic portals are promising tools for improving medical self-management.",
keywords = "AYA, electronic medical record, portal, self-management, sickle cell",
author = "Kidwell, {Katherine M.} and James Peugh and Emilie Westcott and Cara Nwankwo and Britto, {Maria T.} and Quinn, {Charles T.} and Crosby, {Lori E.}",
note = "Funding Information: Received for publication February 26, 2018; accepted August 24, 2018. From the *Division of Behavioral Medicine; †Center for Innovation in Chronic Disease Care; §Division of Hematology, Cincinnati Child-ren{\textquoteright}s Hospital Medical Center; and ‡Department of Pediatrics, University of Cincinnati, Cincinnati, OH. Supported by the National Heart, Lung, and Blood Institute at the National Institutes of Health (grant number K07HL108720). The authors declare no conflict of interest. Reprints: Katherine M. Kidwell, PhD, 3333 Burnet Ave., MLC 3015, Cincinnati, OH 45229 (e-mail: kkidwell56@gmail.com). Copyright {\textcopyright} 2018 Wolters Kluwer Health, Inc. All rights reserved. Publisher Copyright: {\textcopyright} 2018 Wolters Kluwer Health, Inc. All rights reserved.",
year = "2019",
month = oct,
day = "1",
doi = "10.1097/MPH.0000000000001341",
language = "English (US)",
volume = "41",
pages = "561--567",
journal = "Journal of Pediatric Hematology/Oncology",
issn = "1077-4114",
publisher = "Lippincott Williams and Wilkins",
number = "7",
}