Acceptability and Feasibility of a Disease-specific Patient Portal in Adolescents With Sickle Cell Disease

Katherine M. Kidwell, James Peugh, Emilie Westcott, Cara Nwankwo, Maria T. Britto, Charles T. Quinn, Lori E. Crosby

Research output: Contribution to journalArticlepeer-review

Abstract

Objective:To examine the acceptability, feasibility, and efficacy of a health care portal.Observations:Adolescents and young adults with sickle cell disease were taught how to use sickle cell disease conditions page in MyChart and completed questionnaires at baseline, postintervention (T2, 6 wk after baseline) and after 3 months (T3). In total, 44 participants (M age=18.82, SD=2.72) viewed an average of 58.07 pages from T1 to T2. The portal was highly accepted (90.32%). Efficacy data indicated that portal use was associated with improved patient-provider communication.Conclusions:Electronic portals are promising tools for improving medical self-management.

Original languageEnglish (US)
Pages (from-to)561-567
Number of pages7
JournalJournal of Pediatric Hematology/Oncology
Volume41
Issue number7
DOIs
StatePublished - Oct 1 2019
Externally publishedYes

Keywords

  • AYA
  • electronic medical record
  • portal
  • self-management
  • sickle cell

ASJC Scopus subject areas

  • Pediatrics, Perinatology, and Child Health
  • Hematology
  • Oncology

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