Acceptability and Feasibility of a Disease-specific Patient Portal in Adolescents With Sickle Cell Disease

Katherine M. Kidwell; James Peugh; Emilie Westcott; Cara Nwankwo; Maria T. Britto; Charles T. Quinn; Lori E. Crosby

doi:10.1097/MPH.0000000000001341

Acceptability and Feasibility of a Disease-specific Patient Portal in Adolescents With Sickle Cell Disease

Katherine M. Kidwell, James Peugh, Emilie Westcott, Cara Nwankwo, Maria T. Britto, Charles T. Quinn, Lori E. Crosby

Research output: Contribution to journal › Article › peer-review

11 Scopus citations

Abstract

Objective:To examine the acceptability, feasibility, and efficacy of a health care portal.Observations:Adolescents and young adults with sickle cell disease were taught how to use sickle cell disease conditions page in MyChart and completed questionnaires at baseline, postintervention (T2, 6 wk after baseline) and after 3 months (T3). In total, 44 participants (M age=18.82, SD=2.72) viewed an average of 58.07 pages from T1 to T2. The portal was highly accepted (90.32%). Efficacy data indicated that portal use was associated with improved patient-provider communication.Conclusions:Electronic portals are promising tools for improving medical self-management.

Original language	English (US)
Pages (from-to)	561-567
Number of pages	7
Journal	Journal of Pediatric Hematology/Oncology
Volume	41
Issue number	7
DOIs	https://doi.org/10.1097/MPH.0000000000001341
State	Published - Oct 1 2019
Externally published	Yes

Keywords

AYA
electronic medical record
portal
self-management
sickle cell

ASJC Scopus subject areas

Pediatrics, Perinatology, and Child Health
Hematology
Oncology

Access to Document

10.1097/MPH.0000000000001341

Cite this

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abstract = "Objective:To examine the acceptability, feasibility, and efficacy of a health care portal.Observations:Adolescents and young adults with sickle cell disease were taught how to use sickle cell disease conditions page in MyChart and completed questionnaires at baseline, postintervention (T2, 6 wk after baseline) and after 3 months (T3). In total, 44 participants (M age=18.82, SD=2.72) viewed an average of 58.07 pages from T1 to T2. The portal was highly accepted (90.32%). Efficacy data indicated that portal use was associated with improved patient-provider communication.Conclusions:Electronic portals are promising tools for improving medical self-management.",

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AU - Kidwell, Katherine M.

AU - Peugh, James

AU - Westcott, Emilie

AU - Nwankwo, Cara

AU - Britto, Maria T.

AU - Quinn, Charles T.

AU - Crosby, Lori E.

PY - 2019/10/1

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AB - Objective:To examine the acceptability, feasibility, and efficacy of a health care portal.Observations:Adolescents and young adults with sickle cell disease were taught how to use sickle cell disease conditions page in MyChart and completed questionnaires at baseline, postintervention (T2, 6 wk after baseline) and after 3 months (T3). In total, 44 participants (M age=18.82, SD=2.72) viewed an average of 58.07 pages from T1 to T2. The portal was highly accepted (90.32%). Efficacy data indicated that portal use was associated with improved patient-provider communication.Conclusions:Electronic portals are promising tools for improving medical self-management.

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Acceptability and Feasibility of a Disease-specific Patient Portal in Adolescents With Sickle Cell Disease

Abstract

Keywords

ASJC Scopus subject areas

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