TY - JOUR
T1 - A toolkit for accessible and respectful engagement in research
AU - Kidney, Colleen A.
AU - McDonald, Katherine E.
N1 - Funding Information:
This research was supported by a grant to the second author from Oregon Health Sciences University’s Medical Research Foundation and was conducted while she was at Portland State University. The views expressed herein are those of the authors and not necessarily the funder. The authors convey appreciation to our participants and those who assisted us in finding them. They also thank Sandra Nelms, Marilyn Petruzzelli, and Jerry Reid for their assistance.
Copyright:
Copyright 2016 Elsevier B.V., All rights reserved.
PY - 2014/8
Y1 - 2014/8
N2 - Social, scientific, and ethical factors underscore the value of respectfully including people with intellectual/developmental disabilities in research despite significant barriers to their research participation. In pursuit of this goal, we worked with two research advisors with intellectual/developmental disabilities to develop a qualitative study toolkit emphasizing accessibility, flexibility, variety, and responsiveness. The toolkit includes procedures and materials for recruitment, consent, interview locations and questions, breaks, and incentives. We recommend that future research utilizes insights of individuals with intellectual/developmental disabilities in research that impacts their lives, and that researchers systematically improve the use of procedures and toolkits.
AB - Social, scientific, and ethical factors underscore the value of respectfully including people with intellectual/developmental disabilities in research despite significant barriers to their research participation. In pursuit of this goal, we worked with two research advisors with intellectual/developmental disabilities to develop a qualitative study toolkit emphasizing accessibility, flexibility, variety, and responsiveness. The toolkit includes procedures and materials for recruitment, consent, interview locations and questions, breaks, and incentives. We recommend that future research utilizes insights of individuals with intellectual/developmental disabilities in research that impacts their lives, and that researchers systematically improve the use of procedures and toolkits.
KW - disability
KW - inclusion of minority groups
KW - research ethics
KW - research participation
UR - http://www.scopus.com/inward/record.url?scp=84905080429&partnerID=8YFLogxK
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U2 - 10.1080/09687599.2014.902357
DO - 10.1080/09687599.2014.902357
M3 - Article
AN - SCOPUS:84905080429
VL - 29
SP - 1013
EP - 1030
JO - Disability and Society
JF - Disability and Society
SN - 0968-7599
IS - 7
ER -