A toolkit for accessible and respectful engagement in research

Colleen A. Kidney, Katherine E. McDonald

Research output: Contribution to journalArticle

13 Scopus citations


Social, scientific, and ethical factors underscore the value of respectfully including people with intellectual/developmental disabilities in research despite significant barriers to their research participation. In pursuit of this goal, we worked with two research advisors with intellectual/developmental disabilities to develop a qualitative study toolkit emphasizing accessibility, flexibility, variety, and responsiveness. The toolkit includes procedures and materials for recruitment, consent, interview locations and questions, breaks, and incentives. We recommend that future research utilizes insights of individuals with intellectual/developmental disabilities in research that impacts their lives, and that researchers systematically improve the use of procedures and toolkits.

Original languageEnglish (US)
Pages (from-to)1013-1030
Number of pages18
JournalDisability and Society
Issue number7
StatePublished - Aug 2014



  • disability
  • inclusion of minority groups
  • research ethics
  • research participation

ASJC Scopus subject areas

  • Health(social science)
  • Health Professions(all)
  • Social Sciences(all)

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