Abstract
Social, scientific, and ethical factors underscore the value of respectfully including people with intellectual/developmental disabilities in research despite significant barriers to their research participation. In pursuit of this goal, we worked with two research advisors with intellectual/developmental disabilities to develop a qualitative study toolkit emphasizing accessibility, flexibility, variety, and responsiveness. The toolkit includes procedures and materials for recruitment, consent, interview locations and questions, breaks, and incentives. We recommend that future research utilizes insights of individuals with intellectual/developmental disabilities in research that impacts their lives, and that researchers systematically improve the use of procedures and toolkits.
Original language | English (US) |
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Pages (from-to) | 1013-1030 |
Number of pages | 18 |
Journal | Disability and Society |
Volume | 29 |
Issue number | 7 |
DOIs | |
State | Published - Aug 2014 |
Keywords
- disability
- inclusion of minority groups
- research ethics
- research participation
ASJC Scopus subject areas
- Health(social science)
- Health Professions(all)
- Social Sciences(all)